The Boy Whose Skin Fell Off (2004): cast, story & where to watch

Released in 2004, The Boy Whose Skin Fell Off is a documentary and tv movie film directed by Patrick Collerton, running about 50 minutes.

What it’s about. A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.

Who’s in it. The Boy Whose Skin Fell Off stars Jonny Kennedy.

How it landed. With an audience score of 7.4/10, The Boy Whose Skin Fell Off has been warmly received by audiences.

Where to watch. Streaming options change often. See the full, country-by-country breakdown on our where to watch The Boy Whose Skin Fell Off page.

If you liked it. Fans of The Boy Whose Skin Fell Off tend to enjoy One Direction: This Is Us, Burn the Stage: The Movie, BTS World Tour: Love Yourself - Japan Edition and Senna.